
There are dates that live quietly in the background.
Dates that arrive each year carrying more than memory. Carrying weight. Questions. Trauma. A kind of knowing you can feel in your body.
April 2, 2022 is one of those dates for me.
I remember that morning so clearly.
I woke up after a restless night’s sleep, filled with a kind of cautious hope I hadn’t felt in a long time. I was finally on my way to begin a psilocybin clinical trial. I was beyond grateful for the opportunity to be part of this important research—the first of its kind in Canada. It felt like a doorway. Like maybe, finally, I would find relief from the weight of treatment-resistant depression and the darkness I had been carrying for so long.
But there was one thing still standing in my way.
When I arrived at the clinic, I knew there would be a mandatory rapid COVID test before treatment could begin. It was standard at the time.
Earlier that week, though, I had been exposed to COVID—twice. Jacob being one, and a psychiatrist I had spent hours with in close quarters just days before being the other. I had managed to avoid COVID until then, but that morning, everything felt uncertain.
It was the longest fifteen minutes of my life. Everything depended on it. If the test came back positive, I would be sent home. I might have to wait months for another chance.
When the nurse finally returned and gave me the green light to proceed—and told Rich he could go home and they’d call him when I was done—I felt overwhelming relief.
I didn’t know then what that “yes” would come to mean.
Because here is the truth I live with now:
I have spent every day since wishing that test had been positive.
Wishing I had been turned away.
Wishing I had been told, “Not today.”
Wishing, somehow, that things might have unfolded differently.
Wishing I hadn’t spent the next six hours lying on an uncomfortable couch, eye mask on, headphones blaring a dark and disturbing playlist created for the trial—my body convulsing and spasming, while two doctors sat nearby, observing, pen and paper in hand, without once stepping in to ground or calm me.
For four years now, since that day, my body has been in constant turmoil.
What was meant to be hope—a clinical trial, a chance at relief—became something else entirely. A rare, unrelenting neurological disorder that has reshaped every part of my daily life.
The constant tics.
The constant spasms and PGAD.
The numbness and tingling in my hands and feet day and night.
The sensitivity to touch and sound.
A body that no longer feels like a safe place to exist.
Four years. Countless specialists. No answers. No resolution.
Just learning, day by day, how to live inside something that doesn’t let up.
And last night, as we gathered around the Seder table with family and loved ones, I felt the weight of it all pressing in at once.
Passover—the holiday of memory, of telling, of carrying the past into the present.
And there I was, carrying more than I could hold.
The absence of my mom was there, too.
Even though she had stepped away from holidays for many years, something about this one felt different. More final. More real. She isn’t just somewhere else, choosing not to come because she wasn’t feeling well.
She is not here.
Not present.
Not alive.
And my body felt it.
What began as discomfort quickly escalated into one of the worst neurological flare-ups I have experienced in these four years. I couldn’t sit still. I couldn’t hide it. My body moved in ways I couldn’t control—tics, spasms, waves of sensation overtaking me completely.
I felt exposed. Embarrassed. Ashamed. Vulnerable. Uncomfortable.
While everyone else sat around the table retelling the story of Passover, I was fighting my own body, trying to will it into stillness.
Rich gently encouraged me to get up, to walk, to try and shake it off.
But nothing helped.
Last night felt like everything colliding at once.
Grief.
Memory.
Regret.
The endless “what ifs.”
What if that test had been positive?
What if I had come back another day?
What if…?
But Passover reminds us of something deeper, too.
Maybe freedom, for me right now, isn’t about being released from this.
Maybe it’s about loosening the hold of the “what ifs.”
Making space, however small, between me and the pain.
To keep showing up inside a body that feels unbearable.
To sit at the table anyway.
To tell my story, even when it trembles on the way out.
And remembering that even here, even in this, I am still more than what has happened to me.
Maybe being imperfectly perfect is its own kind of exodus.
#psilocybin #clinicaltrial #fouryearslater #mentalhealth #treatmentresistantdepression #grief #memory #neurological #imperfectlyperfect









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